Saturday, March 2, 2019
Augmentative Alternative Communication Intervention Health And Social Care Essay
Children and young person who sustain a traumatic genius injure ( TBI ) and/or spinal pile hurt ( SCI ) may brook impermanent or lasting disablements that affect their address, lingual colloquy and communication abilities. Having a manner to dig on washbasin pay heed extirpation down a josh s confusion and anxiousness, twain subprogram good as enable them to consequence part to a greater extent than active agently in the re em coifmentment function and therefore, retrieve from their hurts. In add-on, effectual communicating with kinsfolk, worry lag, equals, instructors and friends is indispensable to long recuperation and positive results as put ons with TBI and SCI ar integrated screening into their communities. This article describes how rehabilitation teams potty employ enhancive and toss communicating ( AAC ) and countenanceive engineerings ( AT ) to back up the communicating of kids retrieving from TBI and SCI oer clip.1. IntroductionChildren and young person who sustain a serious traumatic encephalon hurt ( TBI ) and/or a spinal cord hurt ( SCI ) oftentimes be lounge around sequealae that can impact their aptitude to spin on efficaciously. In early stages of retrieval, many kids with TBI and SCI be unable to enforce their address or gestures for a garland of medical examination grounds associate to their hurts. As a consequence, they can profit from augmentative and alternate communicating ( AAC ) intercessions that specifically address their ability to read/write head on basic demands and feelings to medical forces and plate members and inquire and react to inquiries. AAC attacks may include holding introduction to a nurse s call signal schemes to serve up a reproducible yes no response techniques that help a kid centre augur to simple messages low-tech boards and books that encourage interaction with ho single-valued functionhold members and ply communicating boards with images or words and speech bring forthing devices ( SGDs ) with preprogrammed messages, much(prenominal) as I hurt Come here, Help me delight When s ma coming? As kids with TBI and SCI recover from their hurts, many no seven-day for make for necessitate AAC. However, some kids face residual ram, address, lingual communication and cognitive damages that affect their ability to pass on opposite, salvage or usage mainstream communicating engineerings ( e.g. , reckoning autos, electronic mail, phones, and so forth ) . A few may necessitate AAC and assistive engineering ( AT ) end-to-end their lives. Having ledger entry to communicating through AAC and AT enables these kids to take part actively in the rehabilitation procedure and at long last, in their households and communities. Without an ability to pass on efficaciously, kids with TBI and SCI will confront unsurmountable barriers to instruction, employment, either twist good as set uping and hold opening relationships and taki ng on preferred social functions as grownups. all in all AAC intercessions aim to back up a kid s current communicating demands while be aftering for the hereafter 2 . However, the severalize of AAC intervention for kids who sustain TBIs and SCIs is different because of the nature of their hurts is different. In add-on, the focal doom of AAC intercessions will differ for really immature kids ( e.g. , shaken babe syndrome ) who atomic number 18 merely developing address and linguistic communication and for those who were literate and chip in some cognition of the universe prior to their hurts ( e.g. , 16 year-old involved hurt in a motor vehicle accident ) . For immature kids, the AAC team will concentrate on developing their linguistic communication, literacy, academic, delirious, and societal accomplishments, every bit good as guaranting that they meet a manner to pass on with household members and rehabilitation staff. For older kids, AAC intercessions build on residuar y accomplishments and abilities to assist irritate better address, linguistic communication and communicating damages every bit good as provide compensatory schemes that concord face-to-face interactions and at long last communicating across distances ( phone, electronic mail ) with squad members, household and friends. AAC intercession ends foolk to advance a kid s active affair in household, instruction, conjunction and leisure activities and purpose to back up the governing body and c be of robust societal webs 4, 18, 25 .While a medley of AAC tools, schemes and techniques atomic number 18 available that take outer communicating accounting entry, successful AAC intercessions for kids with TBI and SCI besides exact that medical staff, household members and finally community forces know how to back up the usage of AAC schemes and engineerings because the demands of these kids change over clip. Speech-language diagnosticians, nurses, occupational healers, forcible he alers, physiatrists, baby doctors, and rehabilitation applied scientists work collaboratively with the kid s household and community-based professionals to set up, keep and update effectual communicating brasss. Ultimately, the end is for kids to take on covet grownup functions AAC can assist them recognize these ends.2. Pediatric TBI and AACAAC intercession for paediatric patients with TBI and stately communicating challenges is an indispensable, manifold, on-going and dynamic procedure. AAC is indispensable to back up the unsocial communicating demands of kids who are unable to pass on efficaciously. It is complex because of the residuary cognitive shortages that oftentimes persist and because many kids with TBI have co-existing address, linguistic communication, ocular, and motor comptroller deficits 11, 10 . AAC intercessions are ongoing and dynamic 12 because kids with TBI experience many alterations over clip and undergo sevenfold passages. Light and co-workers 17 described the on-going, three-year AAC intercession of an stripling who progressed through several AAC dodgings and finally regained operable address. DeRuyter and Donoghue 6 described an person who used many simple devices and a sophisticated AAC system over a seven-month period. Extra studies describe the recovery of natural address up to 13 old ages post outpouring 15, 29 .2.1. AAC Assessment and InterventionAppraisal tools can assist state of affairs and depict the cognitive, linguistic communication and motor shortages of patients with TBI and supply a feign for AAC intercessions. The Pediatric Rancho Scale of Cognitive Functioning 26 is based on the Ranchos Los Amigos Scale of Cognitive Functioning 13 . board 1 describes widely distributed degrees of recovery, based on the Pediatric Rancho Lost Amigos Scale, and gives illustrations of AAC intercession schemes that rehabilitation squads can use across the degrees as described below. aims IV and V. AAC Goal asc ertain responses into communicatingIn the early stage of recovery, paediatric patients at Levels IV and V on the Pediatric Rancho Scale are frequently in the PICU, the ICU, acute infirmary or acute rehabilitation environment. At Level V ( no response to stimuli ) or Level IV ( generalise response to stimuli ) AAC intercessions focus on placing modes that kids can hire to supply consistent and dependable responses. For illustration, staff can utilize simple switches ( e.g. , Jelly BeanA , bounteous RedA and Buddy Button from AbleNet ) , latch-timers ( e.g. , PowerLinkA from AbleNet ) and individual message devices ( e.g. BIGmackA and Step CommunicatorA from AbleNet ) to back up early communicating ( see Table 1 for some illustrations ) . Because kids s early responses may be motorcarmatic instead than knowing, the household and medical/rehabilitation squad can besides utilize AAC engineerings to promote more(prenominal)(prenominal) consistent responses. Families provide valua ble input about the sorts of music, games and favourite toys a kid finds actuating. The squad can so utilize these points to arouse physical responses from the kid. For illustration, if the household determine the electric battery-operated plaything ElmoA from Sesame StreetA , the rehabilitation squad office demonstrate Elmo singing a Sesame Street point-blank and so detect to see if the kid s responds. If the kid begins to turn her point when ElmoA sings, the squad might attach a switch with a battery interrupter to the plaything and inquire the kid to hit the button and play the ElmoA vocal . In making so, the squad can larn several things. For illustration, the squad may observe that a kid is able to follow bids, bespeaking cognitive recovery. The squad may besides get down to see alternate entree methods for kids with atrocious physical damages, i.e. , head motion may go a dependable manner to run an AAC device or cipher weapon in the hereafter. It is seriously to f oretell whether a kid will retrieve natural address during early phases of recovery.2.2. Middle Levels II and iii AAC Goals Increase ability to pass on with staff, household and friends and support active engagement in interventionPediatric patients at Levels three ( localised response to centripetal stimulations ) and II ( antiphonary to environment ) go more occupied in their rehabilitation inventions as they recover some cognitive, linguistic communication and physical abilities. During this stage, long-run shortages that affect communicating become bare ( e.g. , dysarthria, apraxia, aphasia, attending, induction, fund, vision, spasticity ) . Dongilli and co-workers 7 and Ladtkow and Culp 16 besides report natural speech recovery in grownups after TBI at the in-between phases of recovery. Continued give on AAC schemes and engineerings is typically receivable to relentless motor address and/or terrible cognitive-language shortages ensuing from the hurt 12 .AAC interce ssions at these degrees focus on utilizing a kid s near consistent and dependable response to pass on messages, promote active engagement in the rehabilitation procedure and increase interactions with household and staff. AAC intercessions ever take into history the kid s organic evolutional degree and involvements. Table 1 gives some illustrations of AAC engineerings employed during these Levels III and II. For illustration, Jessica was admitted to the infirmary at 18-months with jolted babe syndrome. At Level II, she began reacting to her parents by smiling and express joying and besides began to pull strings playthings with her non-paralyzed manus when staff placed a plaything inwardly her integral field of vision. However, she did non presentation any address or imitative vocal behaviours and her speech-language diagnostician famed a terrible verbal apraxia. Nursing staff and household members noteworthy that Jessica seemed frustrated by her inability to show herself. Prio r to her hurt, she could call over 30 objects ( playthings, pets, favourite sketch characters ) and was get downing to set 2 word sentences together ( Momma adieu, Daddy place ) .AAC intercessions included the creation of a BIGmackA , a single-message address bring forthing device ( SGD ) that enabled the staff and household members to enter a message that Jessica could so speak during her day-to-day activities ( e.g. , more , adieu , turn page ) . Because the BIGmackA is a colourful, big and easy to entree SGD, Jessica was able to press the button despite her upper appendage spasticity and grave ocular field cut. Within a month, Jessica had progressed to utilizing a MACAW by ZygoA , an SGD with eight-location sheathe that staff programmed with words she had used prior to her hurt ( e.g. , mommy, daddy, more, bottle, book, adieu ) . cater besides designed extra sheathings to promote her linguistic communication education by supplying vocabulary that enabled her to bu ild two-word combinations ( e.g. , more crackers ) . Jessica began to show herself at a developmentally appropriate degree, but she had residuary memory shortages that expectd cuing and support from her communicating spouses. For illustration, ab initio, she did non remember how to utilize her AAC system from session to session so staff needed to re-introduce it distributively clip. However, after several months, Jessica began to seek for her SGD to pass on. Jessica, like many kids with TBI at this degree, was able to larn processs and schemes with repeat and support 30 .2.3. Level II and Level I. AAC Goals deem passages, recommend AAC schemes and engineerings for usage at place and in the communityAs paediatric patients passage from Level II ( antiphonal to environment ) to Level I ( oriented to self and milieus ) , they frequently tend from an ague rehabilitation installation to an outpatient scene, place or a oversight installation. Thus, before discharge, AAC squads w ill carry on a chunk AAC judgment and supply long-run recommendations for AAC schemes and engineerings that can enable kids to be integrated successfully back into community environments. Table 1 illustrates the types of AAC engineerings and schemes employed at Levels II and I, as described below.For kids who continue to utilize AAC and AT when they return to their communities, the rehabilitation squad identifies a long-run communicating advocator. This individual, frequently a household member, becomes actively involved in AAC preparation and collaborates with rehabilitation staff to affect the kid s educational staff, extended household and other health professionals 9 . Having a nexus between the rehabilitation squad and community professionals is indispensable because most instructors and community-based clinicians have limited experience working with kids with TBI and may necessitate support to pull off the cognitive and physical shortages frequently associated with TBI. For illustration, McKenzie, a 12 year-old with a terrible TBI secondary to a auto accident, was quadriplegic with terrible spasticity and no upper appendage control. She besides had cortical blindness and important communicating and cognitive damages. As she recovered, McKenzie used a assortment of AAC systems ( e.g. , thumbs up/down for yes no , two BIGmacksA to pass on picks, and a scanning Cheap Talk by Enabling Devicess with four messages to take part in structured activities ) . Prior to dispatch, the rehabilitation squad conducted a formal SGD rating and recommended the Vmax by DynaVox Mayer-Johnson, a fathom end harvest-time device. McKenzie was able to entree the device via a caput switch mount to the side of the head restraint on her wheelchair. apply audile scanning, she could generate and recover messages. Because she was literate anterior to her hurt and could still spell, the staff set up her device to include an alphabet page every bit good as several pages wi th pre-programmed messages incorporating basic/urgent attention demands, gags and societal remarks. Family and friends participated in her rehabilitation and intimate to utilize tactile and verbal prompts to assist her participate in colloquial exchanges. Due to her residuary cognitive shortages, nevertheless, McKenzie had perplexity originating conversations and retrieving where pre-stored messages were in her device. When prompted, she would react and originate inquiries and could prosecute in conversations over multiple bends. Over clip, she began to take part in meaningful, societal interactions, frequently spell out two-three word novel phrases utilizing her alphabet pageWhile her parents were restituting their place to manage her wheelchair, McKenzie transitioned to a regional attention installation that specialized in working with immature people with TBI. The ague rehabilitation squad identified McKenzie s aunt as her AAC advocator because she had participated actively in in front stages of McKenzie s recovery, was adept with the care ( bear downing, set-up and basic trouble-shooting ) of the Vmax and could custom-make and plan in the raw messages into the system. The attention installation staff met with McKenzie s aunt periodic so they could larn how to back up McKenzie s usage of the SGD. specialised developing aims included care and basic trouble-shooting, set up, switch-placement and how to plan new messages to utilize in specific and motivative activities. Staff learned how to restrict the arrangement of her switch when McKenzie became exhausted or her spasticity increased. Additionally, McKenzie s conditiondays staff ( particular instruction coordinator, speech-language diagnostician, occupational healer, and one of her regular schoolroom instructors ) visited McKenzie at the rehabilitation and the attention installations to assist fix for her return place and learned how to back up her in school, given her physical and cognitive restri ctions.2.4. AAC subjects in TBIWhen working with paediatric patients with TBI, three AAC subjects emerge.1. Recovery from TBI is dynamic and takes topographic point over clip. In early phases of recovery, most kids with TBI have physical, address, linguistic communication and cognitive shortages that affect their communicating accomplishments. Depending on the nature and badness of their hurts, nevertheless, most recover functional address, although some will hold life-long residuary address, linguistic communication and communicating shortages. Acute rehabilitation squads can use AAC intercessions to back up communicating, every bit good as proctor the kid s altering communicating abilities and needs over clip.2. The cognitive-linguistic challenges associated with TBI make AAC intercessions especially disputing for rehabilitation staff, every bit good as for households, friends and school forces. Because of the complex nature of the residuary disablements caused by TBI, coactions among rehabilitation specializers, household members and community-based professionals are indispensable. near kids with TBI require AAC supports throughout their lives. Family members, friends and school forces seldom know how to pull off their terrible memory, attending and/or induction shortages that can impact long-run communicating results.3. There is a demand to be after conservatively for passages. Children with TBI will undergo many passages. While research depicting these passages in kids is non available, studies of the experiences of grownups with TBI describe multiple passages over clip. Penna and co-workers 22 noted that grownups with TBI undergo a important figure of abode passages peculiarly in the first twelvemonth following hurt and Fager 9 described the different passages ( acute attention infirmary, outpatient rehabilitation, skilled nursing installation, place with grownup day care services, and finally assisted life ) for an grownup with terrible TBI see over a decennary, documenting important alterations in his cognitive abilities, every bit good as his communicating spouses and support staff. Children with TBI are likely to see even more passages over their life-times.3. Pediatric SCI and AACPediatric patients with SCI frequently have integral cognitive accomplishments and terrible physical disablements that can interrupt with their ability to talk. In add-on, they frequently have important medical complications and may be left(a) with terrible motor damages that make it hard, if non im realizable, for them to be, entree a computing work or take part in the gambling, online and remote societal networking activities embraced by today s young person ( e.g. , texting, electronic mail ) . A subgroup may besides show with a attendant TBI continue as a consequence of the autumn, auto accident or other traumatic event that has changed their lives. For them, AAC intervention must reflect guidelines that take into history both SCI an d TBI.As with TBI, the growing and development inherent in childhood and adolescence and the solely manifestations and complications associated with SCI require that direction be both developmentally based and tell to the person s particular demands 27 Initially, AAC intercessions typically focus on guaranting face-to-face communicating when address is unavailable or really hard over the long term, nevertheless, enabling kids to compose and prosecute in educational, unpaid and pre-vocational activities utilizing computing mechanisms and other mainstream engineerings becomes the focal point.3.1. AAC Assessment and InterventionThe ASIA standard neurologic categorization of SCI from the American Spinal Injury Association and International health check Society of Paraplegia 1 is a tool that rehabilitation squads often use to measure patients with SCI because it identifies the degree of hurt and associated shortages at each degree. This can assist steer the rehabilitation squa d s clinical decision-making procedure for AAC intercessions. As shown in Table 2, kids with mettlesome tetraplegia ( C1-C4 SCI ) have limited caput control and are frequently ventilator dependant. They frequently require oculus, caput, and/or piece control of AAC devices and mainstream engineerings to pass on. While switch scanning is an option for some, it requires higher-level cognitive abilities, endurance, and watchfulness and may be inappropriate for really immature kids and those who are medically delicate 28, 19, 23, 14 . Children with low tetraplegia ( C5-T1 SCI ) demonstrate limited proximal and distal upper appendage control. If fitted with splints that support their arm and manus, some are able to utilize specially adapted reverse options ( e.g. , control bemuse mouse, switch-adapted mouse, trackball mouse ) , big button or light touch keyboards and switches to overleap engineering. These kids are besides campaigners for caput trailing and voice control of AAC de vices due to the weariness and physical attempt involved in utilizing their upper appendages. For illustration, a multi-modal entree method to AAC engineering and computing autos may include voice control to order text, manus control of the pointer with an adaptative mouse to execute other computing machine maps ( e.g. , unfastened plans ) , and an adaptative keyboard to rectify mistakes that are generated while ordering text. This multi-modal attack can be more efficient and less thwarting than utilizing voice control entirely for these kids. Table 2 provides illustrations of appropriate entree options to AAC and mainstream engineerings.3.2. Supporting face-to-face communicatingFor kids with high tetraplegia, being dependent on mechanical airing is scaring particularly when they are unable to digest a speaking valve 21 . Thus, supplying these kids with a manner to pass on is indispensable to their recovery and sense of wellbeing. As kids with lower degrees of hurt are weaned from a ventilator, they may see decreased respiratory control and be unable to talk 2 . Medical specializers can supply entree to AAC schemes and engineerings, which enable these kids to pass on their wants, demands and feelings throughout the twenty-four hours. This allows them to interact with direct attention staff, participate in their rehabilitation procedure, and keep relationships with household and friends.Pediatric rehabilitation squads may utilize a scope of AAC schemes and engineerings to back up face-to-face communicating in kids with SCI. Some illustrations include low tech communicating boards used with oculus regard or oculus pointing, partner-dependent scanning, an electro voice box with intra-oral adapter, or optical maser light indicating to a mark message or missive on a communicating board 2, 3 . Introducing AAC and AT engineerings early in the recovery procedure, peculiarly for kids who demonstrate high tetraplegia, will besides get down to familiarise them wit h attacks they may necessitate to trust on extensively throughout their lives, even after address returns.For illustration, Jared, a 17-year-old high school senior, sustained a SCI in a skiing accident at the C2 degree. In add-on to his hurts, he developed pneumonia and a terrible toi allow bone lesion during his hospitalization, which lengthened his infirmary stay. He was unable to digest a one-way speech production valve due to the badness of his pneumonia and reduced oxygenation during valve tests. Although Jared had minimal caput motion, he was able to command an AccuPointa? caput tracker to entree his place laptop computing machine and spell out messages he could so talk aloud utilizing speech synthesis package. He used his AAC system to bespeak his medical demands to health professionals and subsequently reported that holding the ability to pass on helped relieve some of the anxiousness he experienced due to his status and slewn-out hospitalization. After Jared recovered th e ability to utilize a speaking valve, his work with the AccuPointa? focused on computing machine entree to run into indite and societal communicating demands. Once his lesion had healed, he was able to return place 11 months subsequently. At that clip, all of his schoolmates had graduated. Using the AccuPointa? , Jared was able to finish his GED at place and enrolled in on-line categories at the local community college.3.3. Supporting written communicating and instructionAt the clip of their hurt, some paediatric patients with SCI are pre-literate, others are developing literacy accomplishments, and others have extremely developed literacy accomplishments. However, most kids with tetraplegia will necessitate the usage of assistive engineerings to back up written communicating because their hurts preclude them from utilizing a draw and/or typing on a traditional computing machine keyboard. In a study depicting the educational engagement of kids with spinal cord hurt, 89 % of the k ids with tetraplegia relied on AAC to back up written communicating demands 8 .For illustration, Max, a 6-year-old male child who suffered a C6 SCI after an All Terrain Vehicle accident, was reading age-appropriate sight words and developing his ability to compose individual words prior to his hurt. After the initial recovery period, formal testing revealed that Max had no residuary cognitive or linguistic communication damages. However, he faced important barriers non merely to his move development of age-appropriate reading and composing accomplishments, but besides to his ability to larn and make math, societal surveies, scientific discipline, drama games, use a cell phone, etc. Due to his tetraplegia, he needed ways to entree text and write, calculate, draw and so on. Max learned to entree a computing machine utilizing a big button keyboard, control stick mouse, and adaptative hand-typers ( turnups with an assort stylus that fit on the ulnar side of the manus and let the use r to press the keys of a keyboard ) to back up composing activities and computing machine entree. During rehabilitation, he was able to go on with his school appellative by developing the accomplishments to utilize the engineering and maintain up with his schoolmates. He returned place during the summer and participated in an intense place tutoring plan. By the autumn, he was able to fall in his schoolmates and was able to execute at shape degree in all categories. Essential to Max s early educational success and development, every bit good as his next day employment, may good depend on his ability to compose, calculate and per disaster even pull utilizing a assortment of assistive engineerings that support communicating.3.4. Support societal engagement and pre-vocational activitiesEntree to assistive and mainstream engineerings non merely facilitates engagement in instruction, but besides has deductions for future employment as these kids passage into maturity. helpful and m ainstream engineerings are now available at modest cost that can assist persons with SCI to counterbalance for functional restrictions, overcome barriers to employability, heighten proficient capacities and computing machine use, and better ability to vie for paid employment In add-on, these engineerings besides provide entree to life-long acquisition, recreational activities and societal networking activities. Specifically, computing machines are described as great equalisers for persons with SCI to prosecute in employment chances and long-distance communicating 20 .Social engagement in the current expert age includes more than face-to-face communicating. Social engagement has expanded with the popularity of societal networking sites ( e.g. , Facebook a?and MySpacea? ) , video web-based communicating ( e.g. , Skypea? ) and instant communicating and messaging ( e.g. , Twittera? ) . Progresss in the field of AAC have allowed persons with the most terrible hurts entree computing machine engineerings to prosecute in these societal communicating activities. For illustration, Crystal was a 10-year-old who sustained a C1 SCI due to a autumn. Crystal s hurt left her with no head/neck control and her lone consistent entree method to computerise engineering was through oculus trailing. With an ERICA oculus regard system from DynaVox Mayer-Johnson, Crystal rapidly became independent with computing machine entree. She emailed and texted her friends and household daily, communicated via her Facebooka? history, and engaged in on-line gambling plans with her friends and siblings. This engineering allowed her to get down to pass on once more with her school friends while she was still undergoing acute rehabilitation. Keeping these societal webs is an indispensable constituent to emotional accommodation kids with SCI go through after prolonging a terrible hurt 8 . Additionally, Crystal s friends began to understand that while her damages were terrible, she was essent ially the same individual with the same involvements, wit, ends, and outlooks as before her hurt.3.5. AT/AAC subjects in SCIWhen working with paediatric patients with SCI, three AAC subjects emerge.1. For those with high tetraplegia, AAC may ease face-to-face every bit good as distant and written communicating demands, depending on the developmental degree of the kid. Introducing AAC engineering early, when face-to-face communicating support is needed, helps the kid become familiar with the engineering they will necessitate to trust on after natural address has recovered.2. Return to an educational environment is a primary end with many kids with tetraplegia returning to school within an norm of 62 yearss post discharge 24 . Development of written communicating accomplishments is an indispensable constituent to successful educational completion and future vocational chances 20 ..3. Introduction to methods of written and electronic communicating provides an chance for patients with SCI to prosecute in societal webs through electronic mail, texting, and societal networking sites. As these kids with terrible physical disablements face a life clip of possible medical complications 5 , the ability to keep and develop new societal connexions via electronic media allow them to remain connected during times when their medical conditions require them to be house or hospital-bound.4. DecisionCommunication is indispensable for continued development of cognitive, linguistic communication, societal, and emotional accomplishments. Children with TBI and SCI have physical and/or cognitive-language shortages that interfere with typical communicating abilities. Their communicating demands are supported through AAC schemes and engineerings. A myriad of engineering options are available that non merely back up face-to-face interactions, but every bit of import distant societal networking and educational activities. AAC intercessions in the medical scene that non merely ba ck up communicating of basic medical demands, but besides facilitate affair in societal, educational, and pre-vocational activities will ensue in successful passage to place, school and community environments for these kids.
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